New Webinar Recording: CCS

California Children’s Services (CCS) – The Nuts and Bolts of the Program 

Wednesday September 10, 2014 

 Please join our CCS panel of experts to learn the nuts and bolts of the CCS program including how California created the first public program for children with special health care needs, how CCS works for CSHCN, innovative strategies for improving the program, what parents think about CCS, and potential changes to CCS over the next few years.
Click here to download the slides and webinar recording.

New Webinar Recording

Wednesday August 6, 2014 12:00pm-1:00pm
Join us to learn about the physical, psychological and social aspects of Sickle Cell Disease as well as treatments and outcomes. Learn how to advocate as a caregiver, a patient with sickle cell disease or as a provider so that emergency department visits are more "successful." 
Marsha Treadwell, PhD, Director, Northern California, Network of Care for Sickle Cell Disease
Wanda Williams, Chairperson, Sickle Cell Community Advisory Council


Project Leadership opportunity in Oakland this fall!

We are looking for families who want to be heard. Apply now for Project Leadership!

FVCA Project Leadership will prepare families with the skills and tools needed to partner and engage in all levels of public advocacy on behalf of children with special health care needs. The Project Leadership curriculum introduces parents/caregivers to the nuts and bolts of advocacy in a seven session (4 hours each) training series. FVCA Project Leadership training is funded through a grant from the Lucile Packard Foundation for Children’s Health.

Go to the projects page for more information and how to apply


Assembly Budget Subcommittee Hearing Video

Watch this video of our very own FVCA Project Leadership graduates and Eileen Crumm and Wendy Longwell, FVCA Council members, give testimony at the Capitol on February 24th at the Assembly Budget Subcommittee Hearing.  They spoke passionately about their concerns for the intended changes to the California Children’s Services program.


School health services: 1.2 million CA students have no access to a School Nurse

A recent study of health services in California schools, funded by the Lucile Packard Foundation for Children's Health, and headed by Dian Baker, pictured above, a pediatric nurse practitioner and associate professor of nursing at CSU-Sacramento, was presented in March at the California School Nurses Association in Sacramento.
Health services for California students with special health care needs vary greatly by school district, are provided by a variety of school staff, operate under a confusing patchwork of regulations, and are often underfunded, according to a new study. Researchers from California State University-Sacramento’s School of Nursing analyzed 2011-2012 state education data, interviewed school education experts, and conducted a large-scale survey of certified school nurses who are members of the California School Nurses Association.
To read 3 interesting fact sheets on the findings of their research please click here